A design-led inquiry into personhood in dementia

Jayne Wallace, Peter C. Wright, John McCarthy, David Philip Green, James Thomas, Patrick Olivier

Research output: Chapter in Book/Report/Conference proceedingConference PaperResearchpeer-review

Abstract

Writers and practitioners in dementia care have invoked personhood to offer potential for preserving the agency of people living with dementia. In this context we use personhood to explore how relationships bring agentive potential to experience-centered design through a cocreative, design-led inquiry with Gillian, a woman living with dementia, and John her husband. We designed bespoke probes to empathically engage the couple in the design of both jewellery and digital jewellery to support Gillian's personhood. Our design activity addressed the relationships involved in the context of Gillian's family life and the progression of her illness and how they could be mediated technologically. Reminiscence became, through Gillian and John's own hands, acts of sense making and legacy. The process of design became the way of conducting the inquiry and the designed artifacts became ways of posing questions to make sense of our experiences together.

Original languageEnglish
Title of host publicationCHI 2013
Subtitle of host publicationChanging Perspectives, Conference Proceedings - The 31st Annual CHI Conference on Human Factors in Computing Systems
Pages2617-2626
Number of pages10
DOIs
Publication statusPublished - 27 May 2013
EventInternational Conference on Human Factors in Computing Systems 2013 - Paris, France
Duration: 27 Apr 20132 May 2013
Conference number: 31st
https://chi2013.acm.org/program/

Conference

ConferenceInternational Conference on Human Factors in Computing Systems 2013
Abbreviated titleCHI 2013
CountryFrance
CityParis
Period27/04/132/05/13
OtherTheme: Changing Perspectives
Internet address

Keywords

  • Dementia
  • Empathy
  • Experience-centered design
  • Memory
  • Personhood
  • Probes
  • Reflection
  • Reminiscence
  • Self

Cite this

Wallace, J., Wright, P. C., McCarthy, J., Green, D. P., Thomas, J., & Olivier, P. (2013). A design-led inquiry into personhood in dementia. In CHI 2013: Changing Perspectives, Conference Proceedings - The 31st Annual CHI Conference on Human Factors in Computing Systems (pp. 2617-2626) https://doi.org/10.1145/2470654.2481363
Wallace, Jayne ; Wright, Peter C. ; McCarthy, John ; Green, David Philip ; Thomas, James ; Olivier, Patrick. / A design-led inquiry into personhood in dementia. CHI 2013: Changing Perspectives, Conference Proceedings - The 31st Annual CHI Conference on Human Factors in Computing Systems. 2013. pp. 2617-2626
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Wallace, J, Wright, PC, McCarthy, J, Green, DP, Thomas, J & Olivier, P 2013, A design-led inquiry into personhood in dementia. in CHI 2013: Changing Perspectives, Conference Proceedings - The 31st Annual CHI Conference on Human Factors in Computing Systems. pp. 2617-2626, International Conference on Human Factors in Computing Systems 2013, Paris, France, 27/04/13. https://doi.org/10.1145/2470654.2481363

A design-led inquiry into personhood in dementia. / Wallace, Jayne; Wright, Peter C.; McCarthy, John; Green, David Philip; Thomas, James; Olivier, Patrick.

CHI 2013: Changing Perspectives, Conference Proceedings - The 31st Annual CHI Conference on Human Factors in Computing Systems. 2013. p. 2617-2626.

Research output: Chapter in Book/Report/Conference proceedingConference PaperResearchpeer-review

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Wallace J, Wright PC, McCarthy J, Green DP, Thomas J, Olivier P. A design-led inquiry into personhood in dementia. In CHI 2013: Changing Perspectives, Conference Proceedings - The 31st Annual CHI Conference on Human Factors in Computing Systems. 2013. p. 2617-2626 https://doi.org/10.1145/2470654.2481363