A comprehensive scoping review of ability and disability in ADHD using the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) (Review)

Elles de Schipper, Aiko Lundequist, Anna Lofgren Wilteus, David R Coghill, Petrus J De Vries, Mats Granlund, Martin H Holtmann, Ulf Jonsson, Sunil C Karande, Florence Levy, Omar Al-Modayfer, Luis Rohde, Rosemary Tannock, Bruce John Tonge, Sven Bolte

Research output: Contribution to journalReview ArticleResearchpeer-review

14 Citations (Scopus)

Abstract

This is the first in a series of four empirical investigations to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Attention Deficit Hyperactivity Disorder (ADHD). The objective here was to use a comprehensive scoping review approach to identify the concepts of functional ability and disability used in the scientific ADHD literature and link these to the nomenclature of the ICF-CY. Systematic searches were conducted using Medline/PubMed, PsycINFO, ERIC and Cinahl, to extract the relevant concepts of functional ability and disability from the identified outcome studies of ADHD. These concepts were then linked to ICF-CY by two independent researchers using a standardized linking procedure. Data from identified studies were analysed until saturation of ICF-CY categories was reached. Eighty studies were included in the final analysis. Concepts contained in these studies were linked to 128 ICF-CY categories. Of these categories, 68 were considered to be particularly relevant to ADHD (i.e., identified in at least 5 of the studies). Of these, 32 were related to Activities and participation, 31 were related to Body functions, and five were related to environmental factors. The five most frequently identified categories were school education (53 ), energy and drive functions (50 ), psychomotor functions (50 ), attention functions (49 ), and emotional functions (45 ). The broad variety of ICF-CY categories identified in this study underlines the necessity to consider ability and disability in ADHD across all dimensions of life, for which the ICF-CY provides a valuable and universally applicable framework. These results, in combination with three additional preparatory studies (expert survey, focus groups, clinical study), will provide a scientific basis to define the ICF Core Sets for ADHD for multi-purpose use in basic and applied research, and every day clinical practice.
Original languageEnglish
Pages (from-to)859-872
Number of pages14
JournalEuropean Child and Adolescent Psychiatry
Volume24
Issue number8
DOIs
Publication statusPublished - Aug 2015

Cite this

de Schipper, Elles ; Lundequist, Aiko ; Wilteus, Anna Lofgren ; Coghill, David R ; De Vries, Petrus J ; Granlund, Mats ; Holtmann, Martin H ; Jonsson, Ulf ; Karande, Sunil C ; Levy, Florence ; Al-Modayfer, Omar ; Rohde, Luis ; Tannock, Rosemary ; Tonge, Bruce John ; Bolte, Sven. / A comprehensive scoping review of ability and disability in ADHD using the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) (Review). In: European Child and Adolescent Psychiatry. 2015 ; Vol. 24, No. 8. pp. 859-872.
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abstract = "This is the first in a series of four empirical investigations to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Attention Deficit Hyperactivity Disorder (ADHD). The objective here was to use a comprehensive scoping review approach to identify the concepts of functional ability and disability used in the scientific ADHD literature and link these to the nomenclature of the ICF-CY. Systematic searches were conducted using Medline/PubMed, PsycINFO, ERIC and Cinahl, to extract the relevant concepts of functional ability and disability from the identified outcome studies of ADHD. These concepts were then linked to ICF-CY by two independent researchers using a standardized linking procedure. Data from identified studies were analysed until saturation of ICF-CY categories was reached. Eighty studies were included in the final analysis. Concepts contained in these studies were linked to 128 ICF-CY categories. Of these categories, 68 were considered to be particularly relevant to ADHD (i.e., identified in at least 5 of the studies). Of these, 32 were related to Activities and participation, 31 were related to Body functions, and five were related to environmental factors. The five most frequently identified categories were school education (53 ), energy and drive functions (50 ), psychomotor functions (50 ), attention functions (49 ), and emotional functions (45 ). The broad variety of ICF-CY categories identified in this study underlines the necessity to consider ability and disability in ADHD across all dimensions of life, for which the ICF-CY provides a valuable and universally applicable framework. These results, in combination with three additional preparatory studies (expert survey, focus groups, clinical study), will provide a scientific basis to define the ICF Core Sets for ADHD for multi-purpose use in basic and applied research, and every day clinical practice.",
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de Schipper, E, Lundequist, A, Wilteus, AL, Coghill, DR, De Vries, PJ, Granlund, M, Holtmann, MH, Jonsson, U, Karande, SC, Levy, F, Al-Modayfer, O, Rohde, L, Tannock, R, Tonge, BJ & Bolte, S 2015, 'A comprehensive scoping review of ability and disability in ADHD using the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) (Review)', European Child and Adolescent Psychiatry, vol. 24, no. 8, pp. 859-872. https://doi.org/10.1007/s00787-015-0727-z

A comprehensive scoping review of ability and disability in ADHD using the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) (Review). / de Schipper, Elles; Lundequist, Aiko; Wilteus, Anna Lofgren; Coghill, David R; De Vries, Petrus J; Granlund, Mats; Holtmann, Martin H; Jonsson, Ulf; Karande, Sunil C; Levy, Florence; Al-Modayfer, Omar; Rohde, Luis; Tannock, Rosemary; Tonge, Bruce John; Bolte, Sven.

In: European Child and Adolescent Psychiatry, Vol. 24, No. 8, 08.2015, p. 859-872.

Research output: Contribution to journalReview ArticleResearchpeer-review

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T1 - A comprehensive scoping review of ability and disability in ADHD using the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) (Review)

AU - de Schipper, Elles

AU - Lundequist, Aiko

AU - Wilteus, Anna Lofgren

AU - Coghill, David R

AU - De Vries, Petrus J

AU - Granlund, Mats

AU - Holtmann, Martin H

AU - Jonsson, Ulf

AU - Karande, Sunil C

AU - Levy, Florence

AU - Al-Modayfer, Omar

AU - Rohde, Luis

AU - Tannock, Rosemary

AU - Tonge, Bruce John

AU - Bolte, Sven

PY - 2015/8

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N2 - This is the first in a series of four empirical investigations to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Attention Deficit Hyperactivity Disorder (ADHD). The objective here was to use a comprehensive scoping review approach to identify the concepts of functional ability and disability used in the scientific ADHD literature and link these to the nomenclature of the ICF-CY. Systematic searches were conducted using Medline/PubMed, PsycINFO, ERIC and Cinahl, to extract the relevant concepts of functional ability and disability from the identified outcome studies of ADHD. These concepts were then linked to ICF-CY by two independent researchers using a standardized linking procedure. Data from identified studies were analysed until saturation of ICF-CY categories was reached. Eighty studies were included in the final analysis. Concepts contained in these studies were linked to 128 ICF-CY categories. Of these categories, 68 were considered to be particularly relevant to ADHD (i.e., identified in at least 5 of the studies). Of these, 32 were related to Activities and participation, 31 were related to Body functions, and five were related to environmental factors. The five most frequently identified categories were school education (53 ), energy and drive functions (50 ), psychomotor functions (50 ), attention functions (49 ), and emotional functions (45 ). The broad variety of ICF-CY categories identified in this study underlines the necessity to consider ability and disability in ADHD across all dimensions of life, for which the ICF-CY provides a valuable and universally applicable framework. These results, in combination with three additional preparatory studies (expert survey, focus groups, clinical study), will provide a scientific basis to define the ICF Core Sets for ADHD for multi-purpose use in basic and applied research, and every day clinical practice.

AB - This is the first in a series of four empirical investigations to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Attention Deficit Hyperactivity Disorder (ADHD). The objective here was to use a comprehensive scoping review approach to identify the concepts of functional ability and disability used in the scientific ADHD literature and link these to the nomenclature of the ICF-CY. Systematic searches were conducted using Medline/PubMed, PsycINFO, ERIC and Cinahl, to extract the relevant concepts of functional ability and disability from the identified outcome studies of ADHD. These concepts were then linked to ICF-CY by two independent researchers using a standardized linking procedure. Data from identified studies were analysed until saturation of ICF-CY categories was reached. Eighty studies were included in the final analysis. Concepts contained in these studies were linked to 128 ICF-CY categories. Of these categories, 68 were considered to be particularly relevant to ADHD (i.e., identified in at least 5 of the studies). Of these, 32 were related to Activities and participation, 31 were related to Body functions, and five were related to environmental factors. The five most frequently identified categories were school education (53 ), energy and drive functions (50 ), psychomotor functions (50 ), attention functions (49 ), and emotional functions (45 ). The broad variety of ICF-CY categories identified in this study underlines the necessity to consider ability and disability in ADHD across all dimensions of life, for which the ICF-CY provides a valuable and universally applicable framework. These results, in combination with three additional preparatory studies (expert survey, focus groups, clinical study), will provide a scientific basis to define the ICF Core Sets for ADHD for multi-purpose use in basic and applied research, and every day clinical practice.

U2 - 10.1007/s00787-015-0727-z

DO - 10.1007/s00787-015-0727-z

M3 - Review Article

VL - 24

SP - 859

EP - 872

JO - European Child and Adolescent Psychiatry

JF - European Child and Adolescent Psychiatry

SN - 1018-8827

IS - 8

ER -