Scalable Governance, Control & Management of FAIR Sensitive Research Data

  • Kannan, Anitha (Primary Chief Investigator (PCI))
  • Bonnington, Paul (Chief Investigator (CI))
  • Betbeder-Matibet, Luc (Partner Investigator (PI))
  • Boyd, James H. (Partner Investigator (PI))
  • Boyle, Douglas (Partner Investigator (PI))
  • Ferrante, Anna M. (Chief Investigator (CI))
  • Ferris, Jason (Chief Investigator (CI))
  • Gabbe, Belinda (Chief Investigator (CI))
  • Gorringe, Matthew (Chief Investigator (CI))
  • Gorse, Alain-Dominique (Chief Investigator (CI))
  • Mishra, Gita D. (Chief Investigator (CI))
  • Hier, Richard (Chief Investigator (CI))
  • Padmanabhan, Komathy (Chief Investigator (CI))
  • Sachdev, Perminder Singh (Chief Investigator (CI))
  • Soyer, Peter (Chief Investigator (CI))
  • Preen, David Brian (Chief Investigator (CI))
  • Thompson, Simon (Chief Investigator (CI))

Project: Research

Project Details

Project Description

This project is a national collaboration to deliver a secure, trusted and scalable environment for data governance, control and management services for data custodians and secure remote data analysis environments for research users.

The project addresses the requirements of both ‘Data Custodians’ who are responsible for collecting and managing sensitive research data, and ‘Research Users’ who access sensitive data to address research questions.

Data Custodians require a robust, accredited, regulated and functional environment for the governance, control and management of sensitive data. This is critical to enable data curation, linkage, extraction, sharing with access control, de-identification and analysis.

Such an environment is needed to overcome significant barriers to making sensitive data FAIR, providing assurances to other data custodians regarding confidential and secure data handling, and ensuring researchers comply with ethical and regulatory requirements.

Research Users require simple and secure access to sensitive data and associated tools. They benefit from increased discoverability of data assets, data access through well defined mechanisms and processes, and access to a trusted environment with minimal risks.

The project will
* Deploy and run a tested and proven technology called the SeRP Software Stack as a managed nationally consistent service via deployments and multi-tenancy arrangements to enable research collaborations across jurisdictional boundaries
* Onboard exemplar research projects on the SeRP service and integrate SeRP across specific research applications
* Establish a Community of Practice to enable training, knowledge sharing, development and dissemination of best practices and principles
* Build a pipeline of projects across project partners (and their partners) that will be on-boarded onto the platform, under the current project and into the future
Short titleSecure eResearch Platform
StatusNot started