Addressing emerging ethical, legal and social issues in governance of clinical and genomic datasets to improve human health

  • Newson, Ainsley J. (Primary Chief Investigator (PCI))
  • Ankeny, Rachel (Chief Investigator (CI))
  • Dive, Lisa (Chief Investigator (CI))
  • Kerridge, Ian Harold (Chief Investigator (CI))
  • Stewart, Cameron L. (Chief Investigator (CI))
  • Brown, Alex (Chief Investigator (CI))
  • Hermes, Azure (Chief Investigator (CI))
  • Irving, David (Chief Investigator (CI))
  • Miller, Seumas (Chief Investigator (CI))
  • Smith, Marcus John (Chief Investigator (CI))
  • Hansen, David E. (Chief Investigator (CI))
  • McWhirter, Rebekah E. (Chief Investigator (CI))
  • Mumford, Janette (Chief Investigator (CI))
  • Ferrie, Monica (Chief Investigator (CI))
  • Lipworth, Wendy (Chief Investigator (CI))
  • Petersen, Alan (Chief Investigator (CI))
  • Christodoulou, John (Chief Investigator (CI))
  • Delatycki, Martin (Chief Investigator (CI))
  • Gyngell, Christopher (Chief Investigator (CI))
  • Stark, Zornitza L. (Chief Investigator (CI))
  • Vears, Danya F. (Chief Investigator (CI))
  • MacArthur, Daniel G (Chief Investigator (CI))
  • Gaff, Clara Louise (Chief Investigator (CI))
  • Savulescu, Julian (Chief Investigator (CI))
  • Brion, Marie-Jo (Chief Investigator (CI))
  • Vidgen, Miranda (Chief Investigator (CI))
  • Hofmann, Oliver (Chief Investigator (CI))
  • Keogh, Louise Anne (Chief Investigator (CI))
  • Paterson, Jeannie (Chief Investigator (CI))
  • Prictor, Megan J (Chief Investigator (CI))
  • Griffiths, Kalinda (Chief Investigator (CI))
  • Jorm, Louisa (Chief Investigator (CI))
  • Leach Scully, Jackie (Chief Investigator (CI))
  • Richards, Bernadette (Chief Investigator (CI))
  • Eckstein, Lisa (Chief Investigator (CI))
  • Nicol, Dianne (Chief Investigator (CI))
  • Nielsen, Jane (Chief Investigator (CI))
  • Otlowski, Margaret F.A. (Chief Investigator (CI))
  • Baynam, Gareth S (Chief Investigator (CI))
  • Rizzi, Marco (Chief Investigator (CI))

Project: Research

Project Details

Project Description

Our consortium will generate knowledge to enable more effective and sustainable creation, implementation, and use of clinical and genomic datasets. We will undertake transdisciplinary research to address emerging ethical, legal and social issues (ELSI) in such datasets and clarify how to govern them effectively and responsibly. We will generate a new governance framework to best promote development and use of clinical and genomic datasets, while enhancing public trust.
Short titleEthical Governance for Clinical and Genomic Data
Effective start/end date1/06/2231/05/27


  • bioethics
  • health law
  • sociology
  • risk
  • governance