Projects per year
Personal profile
Biography
Professor Claire Johnson is the Vivian Bullwinkel Chair of Palliative Care Nursing at Monash School of Nursing and Midwifery and the Eastern Health End of Life Care Clinical Lead, and is an adjunct professor in the Medical School at The University of Western Australia. Claire is a registered nurse with experience of clinical care across the life-span. She completed her PhD in Health Behaviour Sciences (University of Newcastle,2007), exploring access to, and use of, palliative care services for people diagnosed with cancer. Prior to her current appointment Claire managed the Cancer and Palliative Care Research and Evaluation Unit at the University of Western Australia where she lead a broad portfolio of research which aimed to improve outcomes for people affected by a cancer diagnosis or advanced chronic illness. She contributes to changes in policy and practice through her research which explores gaps and development and evaluation of innovative interventions in end of life care and through her role on local and state health service implementation and advisory committees. She has co-authored numerous health services reports which have helped reframe program delivery in Western Australia.
Central to Claire’s current position, is her appointment as Clinical Lead for End of Life care at Eastern Health. In this leadership role Claire will lead the multidisciplinary health services to develop and implement best practice care and promote translation of research into clinical practice to support quality care at the end of life for all.
Claire currently leads a research program to develop a method for routine collection of information from general practitioners about the end of life care provided to deceased primary care patients, and the use of data to inform capacity building in primary care. She is a chief investigator for the internationally acclaimed Palliative Care Outcomes Collaboration (PCOC) and has worked widely with palliative care services to embed routine clinical assessment in their day to day care of patients and to optimise the use of data to promote best practice.
Research interests
Development and evaluation of models of palliative and end of life care, end of life care in primary care, health services research, translational research, mixed methods research, use of routinely collected data for quality improvement.
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
External positions
End of Life Care Clinical Lead, Eastern Health
3 Jul 2017 → …
Adjunct Professor, University of Western Australia
30 Jun 2017 → …
Research area keywords
- Palliative Care
- End of life care
- Health Services Research
- Primary Health Care
- Outcomes Research
- Mixed-methods research
Network
Projects
- 4 Finished
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Consumers’ expectations and experiences of end of life care: Carers’ perceptions of dying in a large metropolitan/rural health service in Victoria
Johnson, C., William, L., Vivekananda, K., Licqurish, S. & Marshall, K.
1/06/19 → 31/05/20
Project: Research
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Attitudes towards and knowledge about voluntary-assisted dying (VAD) of Victorian culturally and linguistically diverse (CALD) nurses
Cayetano-Penman, J., Malik, G. & Johnson, C.
Nurses Board of Victoria Legacy Limited (NBVLL)
30/01/19 → 29/01/20
Project: Research
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Development of a routine data collection process in community-based end-of-life care
Mitchell, G. K., Deckx, L. & Johnson, C.
22/11/18 → 30/06/20
Project: Research
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Comparison of end-of-life care for people living in home settings versus residential aged care facilities: A nationwide study among Australian general practitioners
Ding, J., Johnson, C. E., Auret, K., Ritson, D., Masarei, C., Chua, D., Licqurish, S., Mitchell, G. & Cook, A., Jan 2022, In: Health and Social Care in the Community. 31, 1, p. 91-101 11 p.Research output: Contribution to journal › Article › Research › peer-review
3 Citations (Scopus) -
It's all about the individual's right to choose: A qualitative study of Australian culturally and linguistically diverse nurses’ knowledge of and attitudes to voluntary assisted dying
Cayetano-Penman, J., Malik, G., Rogerson, K., Murphy, J., Zhong, Y. & Johnson, C. E., Feb 2022, In: Collegian. 29, 1, p. 84-92 9 p.Research output: Contribution to journal › Article › Research › peer-review
1 Citation (Scopus) -
Provision of end-of-life care in primary care: A survey of issues and outcomes in the Australian context
Ding, J., Johnson, C. E., Saunders, C., Licqurish, S., Chua, D., Mitchell, G. & Cook, A., Jan 2022, In: BMJ Open. 12, 1, 8 p., e053535.Research output: Contribution to journal › Article › Research › peer-review
Open Access2 Citations (Scopus) -
Symptom trajectories for palliative care inpatients with and without hyperactive delirium in the last week of life
Dai, Y., Walpole, G., Ding, J., Scanlon, C., Ho, L., Khoo, R. H., Huang, C., Cook, A., William, L. & Johnson, C. E., Jan 2022, In: Journal of Advanced Nursing. 78, 1, p. 142-153 12 p.Research output: Contribution to journal › Article › Research › peer-review
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Collaborative data familiarisation and quality assessment: Reflections from use of a national dataset to investigate palliative care for Indigenous Australians
Woods, J. A., Johnson, C. E., Allingham, S. F., Ngo, H. T., Katzenellenbogen, J. M. & Thompson, S. C., Jan 2021, In: Health Information Management Journal. 50, 1-2, p. 64-75 12 p.Research output: Contribution to journal › Article › Research › peer-review
4 Citations (Scopus)